Zimbabwe’s 70 000 people with albinism face discrimination, health risks
Duduzile Nyathi
BULAWAYO, Zimbabwe — In Zimbabwe, an estimated 70 000 people live with albinism (PWAs), facing a silent battle against societal prejudice and severe health threats every day.
“People often think we are cursed or bring bad luck, which is far from the truth,” reveals Thabani, a Bulawayo resident with albinism, shedding light on the pervasive stigma that shadows their lives.
The lack of melanin, which gives skin, hair, and eyes their color, leaves those with albinism highly susceptible to skin cancer and eye conditions. Anele, a woman with albonism from Victoria Falls, explains, “Accessing sunscreens or even basic eye care is a luxury here,” pointing out the dire need for resources in a country where the sun’s intensity can be lethal.
Despite these challenges, Zimbabwean law offers some protection. Section 56 (3) of the Constitution explicitly states, “no person may unfairly discriminate directly or indirectly against anyone on one or more grounds, including race, colour, tribe, place of origin, gender, disability, or health status.” However, the reality on the ground reveals a gap between law and practice, with enforcement falling short.
Community initiatives are striving to bridge this gap. The Miss Albinism Zimbabwe pageant not only celebrates the beauty and capabilities of albinos but also serves as an educational platform. “It’s about showing people that we are just like everyone else, with dreams and aspirations,” says pageant fan Ruth Dube, emphasizing the importance of visibility and education.
Healthcare remains a significant barrier. The Zimbabwean healthcare system struggles to cater to the specific needs of albinism, particularly in rural areas where specialized dermatological and ophthalmological services are scarce. This scarcity exacerbates the health risks for people with albinism, making preventative care almost a myth for many.
The fight for recognition and rights continues, with advocacy groups and international bodies calling for more robust action. “We need more than just laws; we need action, empathy, and understanding,” Thabani states, echoing the sentiments of many in the community who yearn for a society where albinism is neither a curse nor a barrier to a fulfilling life.
As Zimbabwe moves forward, the journey towards inclusivity and equality for its 70 000 people with albinism remains fraught with challenges. Yet, amidst these trials, stories of resilience, advocacy, and hope persist. The Miss Albinism pageant and grassroots efforts reflect a community determined to redefine beauty, challenge stereotypes, and claim their rightful place in society.
With each step towards awareness and understanding, Zimbabwe edges closer to a future where albinism is neither a barrier to opportunity nor a mark of discrimination.
